thomas update – wednesday afternoon

I was there when the doctor came in this afternoon when Thomas’ tests came back. The news, as we expected, wasn’t good.

He’s experiencing two types of rejection – I didn’t retain what they were called, and I tried googling when I got home, but I can’t find them (my Google-fu is weak). So the doctor is giving him an anti-rejection drip along with a steroid. The drip takes eight hours to drip – it has to be injected very slowly. It’s the same drip he had in April 2008. And the doctor said that sometimes when a transplant recipient has had this medication before, the body often builds up antibodies, and the medication won’t work a second time. He said after a couple of days, they’ll take him back down to ultrasound and do another scan and biopsy to see if the medication is doing anything. He also said Thomas’ creatinine had gone up from 6.5 to 7.0 since Monday morning. So it’s steadily increased instead of decreasing. That’s not a good sign by itself. He said if the biopsy comes back negative again, then Thomas will have to go on dialysis. Right now, then, it’s completely up in the air as to when he’ll be getting to go home.

Also, last night when I came in from the hospital, I found packages of his medications in his car – unopened still stapled shut from the pharmacy. I’m taking them with me when we go back to see him here in a few minutes. He’s not going to know I’ve got them, but his medical team will. I mean, we all know he’s not been taking his meds, but here’s hard physical proof that he sat there and lied to his doctor all this time.

So that’s what we know right now. As soon as we know anything else, I’ll post another blog – just be sure to keep a watch out on Twitter and Facebook, too. And thanks for all of your help, prayers, and other support. We appreciate all of you!

I’ve had a lot of people ask if they can help in any way at all. The biggest help right now would be prayers – lots of prayer – and some spare cash. I have Thomas’ car right now – so that means I’ve paid for parking today and will have to every day he’s in the hospital (I found out I can buy a weekly parking pass for unlimited parking/use for $20. I can renew it twice. After that it’s free.). Also, I have to have money to eat on while I’m there (a light lunch ~$8) and money for gas – I know I don’t normally drive, but Kathy said I’m welcome to Thomas’ car (which she bought) while he’s in the hospital. I hate to beg but if anyone is willing to help out with anything, then PayPal me at mari @ (without the spaces) ~~ and thank you. And, on the sidebar, on the bottom right, there’s a PayPal donations button if that might simplify things for folks.

Gift shop
Located in the hospital lobby on the first floor, the gift shop sells various personal care items, reading materials, candy and gifts. You may also purchase gift baskets, University of Kentucky merchandise, flower arrangements and stuffed toys by phone. Volunteers will deliver the gifts to UK Chandler Hospital, Kentucky Children’s Hospital and Markey Cancer Center patients. The gift shop accepts cash, Visa and MasterCard and can deliver Monday – Friday, 10 a.m. – 4:30 p.m. Call 859-323-5797 for more information.

Monday – Friday: 10 a.m. to 6 p.m.
Saturday: 10:30 a.m. to 6 p.m.
Sunday: 1 – 5 p.m.

eGreetings delivery
You can send an e-mail greeting to a patient at UK Chandler Hospital, Kentucky Children’s Hospital or Markey Cancer Center. The Volunteer Office delivers eGreetings to patient rooms Monday through Friday.

We cannot forward eGreetings received after the patient has been discharged, so they will be safely discarded. If you have questions about eGreetings delivery, please call the Volunteer Office at 859-323-6023 Monday through Friday, 8 a.m. to 5 p.m. (you have to have his full name, his hometown, and his room number)

(email me for his personal information!)