Days like today, I really dislike Lextran. The thing is, I have to take two buses to get to CKBH for my therapy sessions. That’s usually no big deal. But the second bus runs only every hour (then every 70 minutes, 80 minutes; it gets kinda ridiculous). So to get to my 1pm appointment today, I had to be on the bus at 11:30am so I could be dropped off at Palomar at 12:30pm.Too, we’ve been under flood advisories and watches since yesterday. It’s been miserable wet out there. I was happy walking to the bus, though. Even though the creeks are flooded, I counted at least twenty ducks down there, some in the water braving the rapids. (Which brings to mind something I was told when I was about thirteen: Beware a duck in a raincoat. Duly noted!)
I got to Palomar in one piece and walked over to the clinic. I was early, for a change, so I got to dawdle in the rain and then take my time signing in and stuff. My blood pressure is still up, but that’s no surprise; the good news is that I’ve not gained any weight since the end of October (doing off that Elavil has been a good thing!). I sat down in my therapist’s office, and she said, “So. You’re here. How’s it going?” I burst out laughing and said, “You got an hour?” We busted out laughing. I told Preston earlier I’m sure the rest of the clinic thought she and I were having a weird party or something for as much as we laughed and carried on while I was back there. We laughed and cackled and carried on – you’d have thought we’d known each other our entire lives. That’s why I like seeing her, for as much as the trip and the clinic itself aggravate the piss out of me; we get on like a house on fire. It’s fantastic.
Then she asked, “How’s the boy?” And I dug all three of my notebooks out of my bag. She said, “Really?” lol I said, “They’re all for different things.” I opened the one I was taking notes in when Thomas was in the hospital this last time, and we talked about that. Then I filled her in on Jane’s behavior, and she asked, “Does Jane always act like this?” And I burst out laughing again, and we talked some more. I thought the poor woman was going to need therapy herself by the time I got finished with all that. Then we talked about NaNoWriMo – and ftr, I’ve not written anything since Saturday. I have brain burn out and have been busy with other things. I’m afraid my word count for this month is going to be 26k, which really, given the trouble I’ve had writing the last two years, isn’t shabby at all, so there’s that.
I told her that it finally struck me yesterday about Thomas’ fistula surgery in the morning. I’ve been spastic about it since I woke up yesterday. “OMG, they’re slicing open my child’s artery and slicing open a vein and connecting it to the artery!” :cue spastic flailing and screaming: She said, “But you’re handling every thing really well.” I had to agree. She said she’d have been more worried had I not been spastic.
Then she said, “Well, you seem like you’re doing well. That’s a good thing!” I said, “Yeah, I’m happy.” We talked about my writing some more.
I told her how I’d been riding my bicycle and taking walks, and we talked about the distances I’d been covering. I told her I’d covered some real distance when Thomas was in the hospital both times. I showed her the picture of the very long hallway that runs along Nicholasville Road in the new hospital and told her I’d measured it with GoogleMaps and that it’s somewhere around 330 feet long. We agreed that’s one impressive hallway! But then we discussed how the weather would impact my getting out and about, I joked, “I could just bus to the hospital.” She said, “No doubt!” I told her about the renovations they’re doing on the clubhouse and the fitness center. She said, “Remind me again where you live?” And I said, “Cheddar’s.” We lost it. Totally. Of course I meant across the street from Cheddar’s. But she has ADHD, too, and knows what an ADHD brain does. The new clubhouse and fitness center are supposed to open Wednesday, if they ever get the keycard reader working right. What’s nice about this is that there are going to be televisions all over the fitness center. I’ll have something to keep my brain occupied, even if it’s just The Weather Channel; I won’t have the excuse to tell Preston, “I don’t like going because I get bored,” any more!
She said she’s very proud of how I’ve handled Jane and Thomas’ being in the hospital and all the stress; she said I’ve developed excellent coping skills over the last two years. I said, “I can’t imagine handling it without medication, and I made it through without the Elavil and had very few migraines. I had some severe headaches, but I killed those with Pepsi and Tylenol.” She said, “But Mari, you’re stable.” I burst out laughing again. I said, “Can you write that down for me? I need that written down so I can take it home and show it to Preston. Then I’m going to hang it on my wall and carry a copy in my bag to show to people.” We died laughing.
After this, we went down my medications list, and I told her I have an appointment to see an internist about my blood pressure at Kentucky Clinic on December 19. She agrees this is a very good plan. She wrote out my prescriptions and told me not to come back until the end of January unless I need her. I thanked her profusely. I always do. I don’t know where or what I’d be without her. I really don’t.
So, I got all signed out and made my appointment for the end of January, told everyone Merry Christmas, and went back outside into the rain. Coming up to the top of the hill on Wellington, I saw the 1:30pm bus go through the light and head toward Man O’War. Now, I can’t run for shit; never have been able to – not enough air, short legs, not enough strength, not enough eyesight. Anyway. I told myself if I walked really fast, I could make it to Arby’s and catch that bus, in my rush forgetting that the bus has a ten minute break there. Regardless I did make it and didn’t have to wait for the next one to trundle around at 2:50pm. At 3pm, I’d already transferred buses and gone to Wal-Mart and had my in at the pharmacy to be filled. I was back out at the bus stop for the next bus I needed at 3:30pm, and I got home a long time before I thought I was going to when I set out this morning. This morning, I was thinking somewhere between 5pm and 6pm. What a relief to get home earlier than expected! And that worked out, too. Preston left work early and was home about the time I got supper ready. We don’t get to eat together on days he works, so this was most excellent!
Passed a tree lot on the way down Harrodsburg on the way home and burst out laughing because I thought of Tayler. When the boys were four and two and a half, I drove to Liberty to pick them up for Christmas, and we stopped at the Danville Wal-Mart to pick up some stuff and do a small bit of extra Christmas shopping. Like I always had, I dumped them into a shopping cart out in the parking lot and pushed them up toward the store. I wanted the general merchandise side, so instead of going in through grocery, we just trundled down the sidewalk. About halfway down, Tayler asked a question, and I said, “What?” Tayler asked, “Are those great big alligators going to eat us, Mommy?” I said, “What alligators, Tayler? We’re at Wal-Mart.” He pointed toward the wall. There were a scad of live Christmas trees bundled up and propped against the wall. I said, “Tayler! Those are Christmas trees!” He said, “Oh.” A few beats later, he said, “So those great big alligators aren’t going to eat us?” lmao
Also, Miss Kitty has taken to stuffing toys beneath the Christmas tree skirt. It’s cracking me up. Well, at least she doesn’t lunge at the tree and jack-rabbit it like Grey Lady did, although Kitty did try to climb the last big tree I had that one time …
Tuesday November 29: eta: Kathy called last night while I was in the process of writing this post, and then I got so involved in the post, I forgot to add what she told me. Anyway. Jane had apparently called her yesterday to rip her another new asshole. She wanted to know why the transplant clinic calls Kathy first before they call anybody else about anything. Kathy said she carefully explained that that’s how Thomas asked for it to be set up on the call sheet. Kathy, him, me. And then after they had called Thomas once first by mistake and he never got back in touch with them, and they called Kathy, we double-checked to make sure that they mark to call Kathy first in the future. Jane asked why they couldn’t just call Thomas. Kathy said, “Because Thomas will admit to anybody that he doesn’t understand half what he’s being told, especially over the telephone, and he never remembers to write that stuff down or to record his appointments.” Well, you know that didn’t sit well with Jane. Kathy said, “Well, if you want them to call you first, then you need to have the clinic change it at Thomas’ next appointment Thursday morning. You have to tell them to change it or they won’t know they’re supposed to call a different number.” I was afraid to ask whether Jane ripped Kathy a new asshole over Kathy and Ralph leaving for Florida this morning instead of coming up here to be with Thomas during surgery.